Mission

About EDSers United

EDSers United

At EDSers United, our team is dedicated to our mission.

Mission: To advance rare disease therapeutic research and development, improve diagnostic tools, establish efficacious and cost-effective treatment and management protocols for debilitating rare conditions, and ensure equitable access to high quality, comprehensive health and wellness services to the “whole,” medically complex patient in order to achieve the maximum possible level of overall health and wellness.

EDSers United is a nonprofit organization operating as a NJ public charity. All donations to EDSers United are tax-deductible. EDSers United has joined the Rare Advocacy Movement as a Living Rare community-based organization dedicated to protecting rare disease lived-experience activism.

Click Here to learn about the history of EDSers United and how we have evolved over the past few years.

Learn more about EDSers United