- Defective Initiation of Glycosaminoglycan Synthesis due to B3GALT6 Mutations Causes a Pleiotropic Ehlers-Danlos-Syndrome-like Connective Tissue Disorder
- Ehlers-Danlos Syndrome: A Showcase of conditions that lead to understanding matrix biology
- International Nosology of Heritable Disorders of Connective Tissue, Berlin, 1986
- Clinical Images of EDS
- Collagen genes and inherited connective tissue disease
- Collagen Metabolism: A comparison of diseases of collagen and diseases affecting collagen
- Collagen structure and stability
- Diseases of the collagen molecule
- Letter Dec. 1994 British Journal of General Practice discussing prevalence of EDS to be 1:5000 births and pointing out that EDS can lead to false allegations of child abuse
- Ehlers-Danlos Syndrome - a historical review
- Elastic and Collagenous Networks in Vascular Diseases
- Variants of the Ehlers-Danlos Syndrome: Clinical, Biochemical, Haematological, and chromosomal features of 100 patients
- Hereditary Connective Tissue Diseases in Young Adult Stroke: A Comprehensive Synthesis
- Heterogeneity of the Ehlers-Danlos Syndrome: Description of Three Clinical Types and a Hypothesis to Explain the Basic Defect(s)
- Lethal Complications of the Ehlers-Danlos Syndrome
- The Personal Costs of Caring for a Child with a Disability: A Review of the Literature
- Role of Collagenous Matrices in the Adhesion and Growth of Cells
- Ehlers-Danlos Syndrome Associated with Streptococcal Hypersensitivity
- Collagen structure deciphered
Must Have Documents for Every Patient
The EDSers United Foundation Research Library
The following information made available by the dedicated volunteers of EDSers United is for SELF-EDUCATION only. EDSers United has made the following documents/PDFs available to you in order to provide you with resources and information that you can utilize for healthy discussions with yourself and your support system. Our main focus is to keep you informed. The following literature does not reflect any of the beliefs and/or recommendations of EDSers United. You are responsible for what you choose to do with the information and resources made available to you. Please review our Disclaimer & Information Page before continuing.
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Documents from EDS dedicated Groups & Organizations
- EDNF Learning Conference Notes 2012 - This file was created by Nadia Bodkin for the EDS Community. This file is zipped because it is very large. You will need to unzip this file in order to view it.